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As a person with CFS/FM, I faced a serious depression by the eighth month of oppressive,
intolerable flu symptoms. My life had been turned inside out and upside down. The
depression was an unwelcome first in my life. It was a dreary, defeating, dangerous, dark
tunnel. Thankfully, I received good care for the depression. And, although vestiges of it
lingered for several years, it was eventually overcome. This was true even though the
restrictive limits, the bone-crunching pain, and the debilitating flu-like symptoms
remained.
I am so glad my doctor sent me to a life-affirming psychiatrist
(rather than to a life-defeating pathologist like Dr. Kevorkian). Later, a superb
psychologist continued to assist me in learning how to better cope and live with this
awful illness. Similar to getting help for allergies, sleep disruptions, pain,
arrhythmias, hypertension, mitral valve prolapse, etc., I sought care for the emotional
tidal waves of sadness, depression, loss and other difficult and confusing responses to a
tough illness. I wanted so desperately to learn how one lives with such heavy sickness and
limits. I persevered. Indeed, over time, I've even flourished in some ways despite
the constraints of the illness.
For several days in late August 1996, I pondered with great anger
and sadness the suicides of several individuals with CFS. What a waste of human life! What
a terrible tragedy for the family, friends, and other loved ones left behind! In order to
provide a constructive way to think through the raw emotions, I started a list of reasons
to avoid suicide and champion courage in spite of the disruptive, life-changing
pain and symptoms of CFS/FM. The fragments of the list formed in my mind. Only later did I
attempt to write the thoughts down.
I propose we all create and share powerful lists that reject
suicide as an option. We need to help each other through the despair and darkness of
depression in whatever small ways are open to us.25 Reasons to Avoid Suicide:
- Suicide is too horrible a legacy to
inflict upon your family, friends and other loved ones. For children
whether age 3 or 23 the suicide of a parent is a blacker-than-black tragedy. They
cannot ever truly recover from such a loss. Suicide leaves deep canyons of pain, sorrow,
and chaos for each person touched. Each and every day, the survivors will be haunted by
"why?" We cannot inflict that kind of pain on others.
- The symptoms may improve. The
illness may even resolve itself. It has happened to others many of whom also
experienced periods of despair and hopelessness in the midst of life-wrenching sickness.
There is much room for hope.
- There are always new and better ways to
learn to live with the losses, limits, and pain imposed by sickness. Each
individual can look forward to mastering new coping skills in order to improve his or her
life with illness. Indeed, you can throw yourself into learning such skills. You can
consciously choose to live better and smarter in spite of awful symptoms. You can
seek help.
- Your experiences in learning to
successfully live with illness may assist others in similarly mastering such approaches.
You can help. You can generously give to those who are still struggling. You have much to
offer.
- New and better treatments may be found
next week, next month, or next year. You'll want to be the beneficiary of such
gains. You need to be here to benefit.
- There are new people yet to enter your
life people you'll appreciate, cherish and love. These might
include a grandchild, a special friend, a delightful neighbor, an intimate soulmate, a
lover, a long-distance pal, an unexpected child (your own, a friend's, a sibling's or one
you tutor), and more. It is one of life's great magical mysteries to welcome new people
into our lives. This is true even when one is homebound, or bedbound, or severely
restricted.
- A cause or causes for the illness may be
uncovered sometime in the near future. Your innate curiosity requires that you
find the answers. As different pieces of the puzzle are put in place by researchers, one
sees the momentum for further significant advances. And, finding the causes will lead to a
cure.
- There is so much more to enjoy:
more sunsets and sunrises, more garden tomatoes, more films, more food, more friendships,
more creative pursuits, perhaps some travel, more books, more, more, more . . .
- You may contribute to significant medical
research by volunteering to participate in scientific studies. If you're unable
to do so, or if you don't fit the research criteria, you can encourage others to
participate. These volunteers are absolutely essential to finding cause and cure. The
value cannot be overstated. We're all in this together.
- You may be needed to offer a crucial piece
of advice to a loved one or a friend facing a crisis. You've got to be there to
do so regardless if it's next week or 10 years from today. You want to be there for
them.
- Suicide is selfish, cowardly and
loathsome. We must repeat to ourselves and others: "Suicide is not an
option. Suicide is not an option."
- You'll be needed to sustain others:
your parents, partner, children, grandchildren, larger family, friends, pets, other
patients, a stranger at the bus stop, still yet unknown companions, and more.
- Suicide does not promote advocacy or
activism. It does not help others to learn about the illness. Suicide kills.
- Depression can be overcome. While
it is a common response to debilitating, life-changing illness and disruptive pain, it is
treatable. Time, counseling, medications, support, self-love, and prayer all contribute to
a successful battle over depression. Many, many people have made it through the darkest
depths of depression. They've gone on to live and love. There is light at the end of the
darkest tunnel. There is life with sickness even when one is paralyzed from the
neck down and a respirator is required to breathe.
- Each person is valuable. Each
individual is filled with promise. Each human being has a multitude of gifts to share with
the world. This is true even when we're uncertain as to our purpose and abilities at any
given time. It will come with courage, persistence, and patience.
- Suicide lays waste to the value, promise
and gifts one has to share. Forever.
- There are more smiles yet to enjoy.
There is much more laughter to embrace.
- Suicide hurts everyone. It does
not aid anyone.
- Living on offers so many possibilities.
There are so many angles of life to watch unfold. There are many, many stories in progress
(including our own) to follow. What will happen by 2015 or later to family and
friends, to the neighborhood, to the nation? What will be discovered about our illness and
other poorly-understood medical problems? Will Liam Neeson and Will Smith still be making
movies? Will I be symptom-free? Will the Phillies make it to another World Series? Will I
be able to be more physically active? Will we finally elect a woman as president of the
United States? Will I have less oppressive daily "flu" symptoms? Will my
children have children? Will parts of California be lost under the sea? Will I be able to
resume gainful employment? Will UConn continue to foster powerhouse women's and men's
basketball teams? I want to know how zillions of stories unfold. More importantly, I want
to be around to observe, reflect, and participate in whatever ways are open to me. We are
all a part of many stories.
- Suicide is bad P.R. It confuses
the public.
- Suicide is the result of lousy judgment
rooted in depression and pain. It cannot be blamed on insensitive doctors,
unsupportive friends, lack of a cure, and failures by others. While all of these things
may exacerbate emotional lows, suicide is the decision of one individual. If that
individual were ill with CFS or FM, but not suffering from depression, that person would
never choose suicide. It would be incomprehensible. We need to do a better job
acknowledging and receiving help for depression in its earliest stages. We need to help
each other.
- Do not confuse living with doing.
Life is also be-ing. A rich life is possible even in the midst of dismal symptoms. (Read
M. Scott Peck's book, A Bed by the Window.)
- You would not counsel a loved one living
with a difficult, lengthy illness to give up and die. You would not tell a person
living with CFS or FM that she or he is of no value and therefore is not worthy of living.
You wouldn't pick up the phone and solicit help from "Dr. Death" just because a
person faces depression while suffering with a painful, debilitating illness. No. You'd
compassionately urge your loved one to value his or her self despite the rotten,
despicable illness. You would fight relentlessly to have the person find a ray of hope.
You would seek assistance and intervention from professionals. You'd recount how you and
others have made it beyond the darkness. Counsel yourself in the same loving,
life-affirming manner in which you would counsel another.
- Disability rights activists have several
slogans, one of which labels Kevorkian as a "serial killer." Another is
a dog tag which requests that "no expense be spared" to keep you alive. The
philosophical and political slants are readily apparent. It is wrong to judge a person as
"unfit" to live because of horrific, ugly, painful illnesses. Don't succumb to
false images of what it means to lead a "normal" life. Find strength and
inspiration in the stories of so many severely disabled persons who courageously pursue
life's challenges and joys. Get mad. Get angry.
- Suicide ends life. It's terminal.
About the Author:
Susan Dion resides in rural southern New Jersey. She's been ill
since 1989, but continues on with hope and strength.
For More Information:
Information is available from the National Institute of Mental
Health (NIMH), an institute of the National Institutes of Health, on disorders of the
brain, understanding the brain, understanding mental illness, depression, etc. Order from:
NIMH Information Resources and
Inquiries Branch
5600 Fishers Lane, Room 7C-02
Rockville, MD 20857
Phone (301) 443-4513
Toll-free information on depression: 1-800-421-4211
Toll-free information on panic: 1-800-64-PANIC
www.nimh.nih.gov
Brochure prepared and distributed
by the
National Chronic Fatigue Syndrome and Fibromyalgia Association
* Brochure may be reproduced provided source is credited * |